Firstly, I am so glad I can be of some help to you when you are dealing with such unpleasant symptoms. My own most severe symptoms are usually respiratory, however I do regularly experience both the chronic myofascial pain that has been labelled ‘fibromyalgia’, and the sudden onset of severe pain in a specific joint thanks to my hypermobile physical structure. Whenever I experience more intense pain I treat it as a reminder of just how important self-care strategies have been for much of my adult life. This is the reason I hand out tennis balls and mini foam rollers to the people who come to see me for Functional Integration hands-on Feldenkrais lessons. Some problems respond well to movement alone, some need a little bit of extra attention.
Thriving with Hypermobility and Fibromyalgia…
I decided that finding ways to manage my health issues by myself was the only sensible approach once I realised that the ‘symptoms’ I was dealing with required medications that would be harmful to my overall health in the long-term. I now consider this to have been a lucky break, as I am confident that all of us would benefit from a more proactive approach to our own health and wellbeing.
Hypermobility Spectrum Disorders and Ehlers-Danlos Syndrome (EDS) are often characterised as extremely debilitating, but thanks to my own direct experience I know there are a lot of us out there managing pretty well considering what the worst case scenarios can be. As so many of us with some version of this condition find ourselves struggling with chronic health issues I am on a mission to encourage all those with auto-immune-related illnesses to do as much as they are able to take the pressure off their immune system, and lessen the severity of the symptoms they are experiencing. I should perhaps also mention at this point that pain killers don’t really work for me (not uncommon for people managing hypermobile conditions), which makes it very easy not to bother taking them.
Dairy foods and respiratory issues…
I parted ways with the medical paradigm many years ago – my doctors would not accept that steroid inhalers were triggering my trachea infections (which then in turn generated acute asthma attacks), and after a few frustrating discussions with various GPs I became a medication refusenik. Back in my youth a friend training as a biochemist told me that coming off dairy foods might relieve my respiratory problems – something no doctor has ever mentioned – and that discovery got me started on finding ways to take care of myself. I have never looked back.
Eating for Better Health
I became aware of the benefits of ketogenic diets when I first came across the science in the 1980s, and I experienced an enormous boost in my own vitality when I went on the Atkins diet for the first time. This means I am very confident about the possibility of improving one’s quality of life with the appropriate dietary changes. This is such an important topic that I have written three in-depth articles about the possibilities of anti-inflammatory diets, so I won’t go into detail here – I recommend these articles for anyone dealing with chronic illness of any sort:
Eating Your Way To Wellness
Eating for Wellness 2: A Free Course On YouTube
Living Bone & The Modern Diet
Stress-related illness and Dr Gabor Maté
I have also recently demonstrated to my own satisfaction that working directly on calming the nervous system also helps speed up improvement with even very long-term chronic conditions – in my case asthma and allergic rhinitis. I now go for long periods with no need for asthma medication and no longer suffer asthma attacks and chest infections with every virus. Somewhat frustratingly however I AM currently having more frequent head colds again, after experiencing a great improvement in recent years. As I have been immersed in this process for so long I am all too familiar with the way lifestyle changes can lead to a sense of taking two-steps-forward-and-one-step-back; in my own experience the healing path meanders, and winds back on itself quite often. I have so much experience of the different self-help strategies out there that I need to balance my enthusiastic recommendations with an awareness of what the person I am chatting to can take on board at that moment, and this is one of the reasons why I am producing more written material about self-healing, so that I can present all the different aspects of this self-empowering process in a more ‘digestible’ manner.
With regard to the psyche side of the somato-psychic health equation, as much as possible I prefer to recommend experts with a strong scientific background, as most people are more comfortable with a science-and-evidence-based approach. I often recommend Gabor Maté as he is so well-established within the medical community. It is helpful that he does not pressure people to come off medication, and he has lots of evidence to share regarding the stress-related elements of auto-immune diseases of all designations.
I did not take to his manner at first, but I have come to recognise that he is extraordinarily kind; he expresses great compassion and understanding for the everyday struggles we are all dealing with. My own aims as a teacher are always to respond with kindness and compassion, while at the same time being able to say what needs to be said in an open and honest manner, so he is a great model for me. He uses examples of well-known sufferers of a particular illness, which means their personal histories are already available to the general public, and thus he is not risking anyone’s privacy by discussing their case history in a public forum. Gabor is confident that even severe health problems can be improved by working directly with emotional/social/behavioural interventions, and he puts a lot of emphasis on how important it is to take “response-ability” for your health without feeling the need to take the “blame” for it as well.
My aim is to encourage you to feel that your unwellness can respond positively to changes in those aspects of your life that you are able to take charge of, i.e. diet, and emotional health, and fortunately this approach is becoming less radical as medical science begins to acknowledge that human beings are “large complex biological systems” with bio-psycho-social health requirements that are all essential to our wellbeing.
Heal = Whole: Dr Iain McGilchrist & The Divided Brain
I have noticed that many science-based health commentators become more spiritually focussed as time passes, and I suspect this is a natural transition. The term “health” derives from the old English word for whole, and thinking in wholes is finally back in fashion after 200 years of Cartesian Dualism and a western science community dominated by a reductionist model with a limited concept of the – very complex – relationship between cause and effect.
Making connections is the way the right brain organises our experience, and it is the side of the brain that feels awe, and what for want of a better word we often refer to as a sense of “one-ness” with both humanity and nature. The left side of the brain is the language-generating side, and it loves to win all the arguments, as Iain McGilchrist explains with such clarity in this excellent animation:
Dr. Jill Bolte Taylor: A joyful “Stroke Of Insight”
Those of us who are naturally more analytical are often better at avoiding the sort of “hippy-dippy” language that implies a lack of scientific rigour––we are familiar and comfortable with the mindset of the left-brain information-processing style, so we know how much terminology matters when negotiating a change in the dominant cultural paradigms. Even very science-focussed teachers can slip into the imprecise language of the right brain (I hesitate to point fingers but am happy to gossip). Jill Bolte Taylor’s TED talk is a great example of someone who straddles the two processing styles with elegance, here it is if you haven’t seen it yet:
Introducing the concept of a “healing crisis”
An important aspect of the healing process is that earlier symptoms can re-surface. As those of us with autoimmune issues are already experiencing a wider range of symptoms than most, we are thus naturally concerned when more begin to emerge. For this reason I prefer to suggest adaptable healing strategies that can be paced to suit the individual. For myself I am at ease with experiencing the revival of earlier symptoms as an unavoidable aspect of the self-healing process, but that does not mean I am unsympathetic to those who have not yet developed the confidence I have that these temporary reversals are an important part of healing and are therefore to their ultimate benefit. In fact to a certain extent it is the new symptoms I experience that help me recognise that what I am doing is definitely working. Thanks to years of homeopathy I am very familiar with the “healing crisis” and celebrate it as a positive sign of returning health.
Seek out stories of healing – they will lift your spirits on your journey…
I do recommend stories of healing as a useful resource. One of the reasons I value Tim Park’s Teach Us To Sit Still so much is that he makes it clear that the path to better health is slow and steady, rather than a dramatic sequence of spectacular “breakthroughs”. One source I strongly recommend is the book Remarkable Recovery, which offers a selection of fascination case histories of the kinds of healings that doctors cannot explain, and which are often described as ‘spontaneous remission’. These stories come from an extremely large online archive: Spontaneous Remission: An Annotated Bibliography. The archive is vast, however the book is a manageable size and is available on Audible, and Kindle. I follow a lot of online commentators who are also on a healing journey like mine – there really is no reason to feel alone on your own healing journey.
A Selection Of Healing Stories
A Doctor reverses her daughter’s autism symptoms using diet…
There is a wonderful talk up on the net from a Doctor who reversed her daughter’s autism symptoms completely only once she eliminated every last scrap of gluten from her diet; her daughter was so much better after an initial change of diet that her mother continued to strive for a full recovery. I know I am repeating myself when I say that the medical community is way too wary of creating “false” hope, and far too keen on generating what may well actually be a thoroughly false sense of “despair” and resignation.
A doctor reverses the severity of her Multiple Sclerosis…
Diet alleviates Parkinson’s Disease…
Mental Health Disorders and Diet…
Overcoming Auto-Immune Disease…
I will stop there, but there are plenty more, so do keep searching for answers, and I will keep sharing everything I am learning.
